Below are links to some other very fine sites where you will be able to find out more information about Galactosemia.

www.galactosemia.org
is the site for Parents of Galactosemic Children, Inc.

www.galactosemia.com
Galactosemia Resources and Information,
sponsored by the Washington Online Learning Institute

Screening Spotlight
A part of the MN Dept of Health Newborn Screening Website where parents and families can share their experience with newborn screening and living with a diagnosis, such as Galactosemia. We feel this site is especially important in educating parents-to-be and the public about the importance of newborn screening and follow-up for all conditions screened for in Minnesota.

For Minnesota Residents Only
A website for Minnesota Children with Special Needs program.
It has a central directory of services by county for young children and other resources.
http://www.health.state.mn.us/divs/fh/mcshn/mcshn.html

Diet Exemption cards are available for MN residents when bringing food into an establishment for special diatary needs.

 A few excellent resources for parents include the following:

"Understanding Galactosemia: A Diet Guide"
UW-Biochemical Genetics Program
ATTN: Sandy van Calcar
1500 Highland Avenue
Madison, WI 53705
Calcium Presentation Handout from Spring '07 Meeting, Bloomington, MN
(pdf format)

Questions & Answers from Health Nutritionst Dorothy Markowitz
(pdf format)

Verbal Dyspraxia Article
(pdf format)

Galactosemia & Speech Development Bibliography
compiled by Dr. Susan Berry

Dairy-Free Recipes from Angela Litzinger
Guest presenter at the May 2009 GFMN meeting
(pdf format)
If you have not registered with the National Galactosemia group, Parents of Galactosemic Children, Inc. or if you haven't registered recently,
They have requested that you register or re-register so they can update their database to go with their new website. Click here to register.
ABC Book
Created by Galactosemic Families of Minnesota, this book illustrates dairy-free foods from a to Z.

Copies can be purchased for $8 plus $2 for shipping and handling.

Contact:Barb Bense
bense@rea-alp.com
If you come across great online sites where you buy dairy-free foods that maybe can't always be found in local stores, please share them with us and we'll post them here. Thanks!

Food Allergy Network  www.foodallergy.org

Illinois Nut Company and Fantasia Chocolates, Inc.,
Pareve Chocolate, M & Ms, Chocolate Chips, etc.
3745 West Dempster Street, Skokie, IL 60076
Phone: 847-677-5777 or 800-590-NUTS or Fax: 847-677-5778
Most common Dairy Free Products ordered from Illinois Nut
www.illinoisnut.com
ILLNUT@aol.com

Nutrilicious Natural Bakery
Pareve doughnuts, cookies, brownies
Phone: 708-354-7777 or 800-835-8097 Address: 926 W. Estes Court, Schaumburg, IL 60193
\www.nutrilicious.com

Vance's Darifree Non-dairy Beverages
(white or chocolate flavored) Also available in powder.
Phone: 800-497-4834
www.vancesfoods.com

Chocolate Emporium, Inc. – www.choclat.com
kosher pareve chocolates

Turtle Mountain – www.turtlemountain.com
Dairy Free and Lactose free frozen treats

Amanda’s Own Confection – www.amandasown.com
dairy free and lactose free candies

Hero Nutritionals – www.heronutritionals.com
calcium supplements and vitamins

WaWa Juice – www.wawa.com
fruit juices

It’s Soy Delicious – www.itssoydelicious.com
dairy free ice cream and treats

Tofutti Brands, Inc. – www.tofutti.com
nondairy cheese, ice cream and frozen treats
A Good Calcium supplement we've found:
Adora dark chocolate
1 disk contains
500 mg of calcium
40mcg of vitmin K
100IU of vitamin D
order online at
www.adoracalcium.com
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