Below are links to some other very fine sites where you will be able to find out more information about Galactosemia.

www.galactosemia.org
is the site for Parents of Galactosemic Children, Inc.

www.galactosemia.com
Galactosemia Resources and Information,
sponsored by the Washington Online Learning Institute

For Minnesota Residents Only
A website for Minnesota Children with Special Needs program.
It has a central directory of services by county for young children and other resources.
http://www.health.state.mn.us/divs/fh/mcshn/mcshn.html
A few excellent resources for parents include the following:

"Understanding Galactosemia: A Diet Guide"
UW-Biochemical Genetics Program
ATTN: Sandy van Calcar
1500 Highland Avenue
Madison, WI 53705

Cost is $5 (Payable to UW-Biochemical Genetics Program)
This resource is a MUST have; it is very helpful!

"Parents' Guide to Galactosemia Booklets" Part I and Part II
Bonnie Mah, MPH
CA Dept. of Health Services
Genetics Disease Branch/Newborn Screening
850 Marina Bay Parkway F175, MS 8200
Richmond, CA 94804
(510) 412-1494
We think these are free; these are helpful in the beginning and excellent to use when explaining to kids and/or adults.

"Living with Galactosemia: A Handbook for Families"
I.U.P.U.I. Bookstores
1830 West 16th Street
Indianapolis, IN 46202
$3 a copy (Payable to I.U.P.U.I. Bookstores)
If you have not registered with the National Galactosemia group, Parents of Galactosemic Children, Inc. or if you haven't registered recently,
They have requested that you register or re-register so they can update their database to go with their new website. Click here to register.
If you come across great online sites where you buy dairy-free foods that maybe can't always be found in local stores, please share them with us and we'll post them here. Thanks!

Food Allergy Network  www.foodallergy.org

Illinois Nut Company and Fantasia Chocolates, Inc.,
Pareve Chocolate, M & Ms, Chocolate Chips, etc.
3745 West Dempster Street, Skokie, IL 60076
Phone: 847-677-5777 or 800-590-NUTS or Fax: 847-677-5778
www.illinoisnut.com
ILLNUT@aol.com

Nutrilicious Natural Bakery
Pareve doughnuts, cookies, brownies
Phone: 708-354-7777 or 800-835-8097 Address: 926 W. Estes Court, Schaumburg, IL 60193
\www.nutrilicious.com

Vance's Darifree Non-dairy Beverages
(white or chocolate flavored) Also available in powder.
Phone: 800-497-4834
www.vancesfoods.com

Chocolate Emporium, Inc.www.choclat.com
kosher pareve chocolates

Turtle Mountain www.turtlemountain.com
Dairy Free and Lactose free frozen treats

Amanda’s Own Confectionwww.amandasown.com
dairy free and lactose free candies

Hero Nutritionalswww.heronutritionals.com
calcium supplements and vitamins

WaWa Juicewww.wawa.com
fruit juices

It’s Soy Deliciouswww.itssoydelicious.com
dairy free ice cream and treats

Tofutti Brands, Inc.www.tofutti.com
nondairy cheese, ice cream and frozen treats

Calcium Presentation Handout from Spring '07 Meeting, Bloomington, MN
(pdf format)

Questions & Answers from Health Nutritionst Dorothy Markowitz
(pdf format)

Verbal Dyspraxia Article
(pdf format)

Galactosemia & Speech Development Bibliography
compiled by Dr. Susan Berry

A Good Calcium supplement we've found:
Adora dark chocolate
1 disk contains
500 mg of calcium
40mcg of vitmin K
100IU of vitamin D
order online at
www.adoracalcium.com
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